Brain Health Leadership
Click each title below to reveal members information
Collette Adamsen, PhD (Turtle Mountain Band of Chippewa)
National Resource Center on Native American Aging
Melissa Begay, MD (Diné)
Department of Pulmonology, Critical Care and Sleep Medicine, University of New Mexico
Carla Eben (Pyramid Lake Paiute)
Senior Services Director (Title VI)
Director of Dementia Friendly Pyramid Lake
Pyramid Lake Paiute Tribe
Leslie Best, BSW
Senior Public Health Consultant
National Association of Chronic Disease Directors (NACDD)
Jennifer Carson, PhD
Dementia Engagement, Education and Research (DEER), University of Nevada
Ian Kremer, JD
Leaders Engaged on Alzheimer’s Disease (LEAD) Coalition
Kerri Lopez (Tolowa)
Director, Northwest Tribal Cancer Control Project
Director, Western Tribal Diabetes Program
Northwest Portland Area Indian Health Board (NPAIHB)
Evelina Maho, MAdm (Diné)
Public Health Program Manager
National Council for Urban Indian Health (NCUIH)
Wes Martin Jr., JD (Oneida)
Great Lakes Native American Elder Association
Joseph Ray (Laguna/Zuni Pueblo, Maidu)
Elder Consumer Representative
Chair, National Congress of American Indians: Disabilities Committee
Kyle Wark, MA
Lucille White (Seneca)
Elder Consumer Representative
Tom Teasdale, DrPH, FGSA, FAGHE
Presidential Professor & Chair
Department of Health Promotion Services, University of Oklahoma Health Services Center
Chandra Wilson, MSW (Klamath, Modoc, Yahooskin Paiute)
For BOLD, NW Tribal Elder Project
Northwest Portland Area Indian Health Board (NPAIHB)
Blythe Winchester, MD, MPH, CMD (Eastern Band of Cherokee)
Cherokee Indian Hospital
Certified Medical Director
Tsali Care Center
Chief Clinical Consultant: Geriatrics and Palliative Care
Indian Health Service
Director, Health Improvement
Association of State and Territorial Health Officials (ASTHO)
B. Josea Kramer, PhD
VA Geriatric Scholars Program & Associate Director for Education/Evaluation
Geriatric Research Education and Clinical Center, VA Greater Los Angeles Healthcare System
National Association of Area Agencies on Aging (n4a)
Health Program Manager | Alzheimer’s Disease and Related Dementias
Idaho Department of Health and Welfare: Division of Public Health
Alzheimer’s Disease Program Initiative Grant
Absentee Shawnee Tribe of Oklahoma
Great Lakes Intertribal Council
Associate Director of the Healthy Brain Initiative
Larry Curley (Navajo)
National Indian Council on Aging (NICOA)
J. Neil Henderson, PhD, MS (Choctaw)
Memory Keepers Medical Discovery Team – Health Equity, University of Minnesota Medical School
Tassy Parker, PhD, RN (Seneca)
Center for Native American Health
Associate Vice Chancellor for American Indian Health Research & Education, University of New Mexico Health Sciences Center
International Association for Indigenous Aging (IA2)
Soo Borson, MD
University of Washington School of Medicine, Psychiatry and Behavioral Sciences
BOLD Center for Excellence: Early Detection of Dementia
Rosie Ferris, MPH
Research Project Manager
Division of Geriatric Medicine and Palliative Care, Department of Medicine, NYU School of Medicine
BOLD Center for Excellence: Early Detection of Dementia
Valerie Gruss, PhD, APRN, CNP-BC, FAAN
Healthy Brain Initiative Component B
Brain Health Advisory Council Feature – Chandra Wilson
Chandra WilsonProject Manager – Bold NW Tribal Elder Project – Northwest Portland Area Indian Health Board (NPAIHB) I started my work in AI/AN public health services over two decades ago without knowing or having any understanding of the healthcare delivery systems. My interests and work are committed to developing programs and policies that will support tribal communities and address the persistent health disparities that tribal communities experience. I was born into a reservation community that views life through a Native lens which is a particular way of living; my vision has remained the same, to live out the ways I was raised by my grandparents, and that is to live in the footsteps of our ancestors, and to be guided by purpose and a good life. To me, this looks like to nurture, teach, protect, promote, provide, and advocate for the well-being of tribal communities, families, youth, and elders. This includes promoting traditional wellness, for long, healthy lives for our people. I want to help our tribal communities, our tribal programs, and families learn about dementia by understanding more about Alzheimer’s and how to recognize the early signs of memory loss. I am interested in serving on the national brain health advisory group for several reasons. I care about people. I care about elders, I care about the health of our brain. I care about traditional-wellness practices. I didn’t think twice about taking care of my brain until I experienced a traumatic brain injury. During my time serving on the advisory group, I hope to, build connections and expertise in dementia and brain health – bringing my knowledge, energy, and experience to the table and building relationships with other folks who care about people, elders, and brain health. Chandra Wilson serves as the program manager for BOLD and the NW Tribal Elder’s Project at the Northwest Portland Area Indian Health Board located in Portland, Oregon. In her role as the program manager, she manages and is responsible for supporting the goals and objectives for the BOLD grant and oversees and manages the overall work for the BOLD and NTEP projects and is responsible for assisting the member tribes of Idaho, Oregon and Washington with capacity building to address Alzheimer’s disease and related dementias.
Brain Health Advisory Council Feature – Tiffany Robb
Tiffany Robb, MHS
Idaho’s ADRD Program Manager
I had the great honor of being very close to my grandparents and great-grandparents as a child. Working in the garden, cooking, fishing, or even providing emotional support while Grandpa worked on his truck are some of the activities I enjoyed while being with my grandparents. When one of my grandfathers became ill, and it led to a state of dementia, I wanted to be there at his bedside. I tried to stand as his advocate and honor him the best I could.
I guess you could say the experience I had with my grandfather’s death and my connection with my elders is what drew me to working in the field of Alzheimer’s Disease and Related Dementias (ADRD). I previously worked to support family caregivers at Boise State University’s Center for the Study of Aging when my current position was created. I knew I needed to become the Program Manager for the state’s new ADRD Public Health Program. This was an opportunity to continue my work supporting caregivers while also serving others like my grandfather.
My interest in serving on the National Brain Health Advisory Group was guided by the belief that we do
not know everything and as we develop our statewide ADRD Program, we need to place ourselves in
positions of learning. I hope to gain relationships, an understanding of how I can become more culturally
competent, and how our ADRD Program can best serve all of those who live within the boundaries of
Brain Health Advisory Council Feature – Collette Adamsen
We are honored to feature Dr. Collette Adamsen as this month’s Brain Health Advisory Group Member Feature.
Collette is originally from Belcourt, North Dakota, and is an enrolled member of the Turtle Mountain Band of Chippewa Indians. Since 2017, Dr. Adamsen has served as the director of the National Resource Center on Native American Aging (NRCNAA) at the Center for Rural Health (CRH) at the University of North Dakota (UND) School Medicine and Health Sciences in Grand Forks, North Dakota.
Growing up, Collette shared that the support she received from her grandparents and other elders in the community was extremely important to her. As a result, she dedicated herself to giving back and working with native communities and elders.
Collette reflected on how meaningful it is to listen to and visit elders from many communities, including her own, “being guided by elders allows us the opportunity to learn from their knowledge and wisdom.”
Before joining the Center for Rural Health, Collette received a Bachelor of Arts degree in Economics, a Master of Public Administration with an emphasis in Health Administration, and a Doctorate in Educational Foundations and Research from the University of North Dakota.
We asked her why she joined the IA²’s Brain Health Advisory Group. She shared how rewarding it is working with multiple tribes and organizations that all come together to better the lives of elders in communities. With so much information and education needed,
Collette noted, “helping to be part of a group of trailblazers in finding ways to identify strategies and solutions to help elders, families, and caregivers who are affected by dementia is important and needed.” Check out Collette’s related article titled “The Association of Cultural Participation and Social Engagement with Self-Reported Diagnosis of Memory Problems Among American Indian and Alaska Native Elders.” The article examines the association of cultural participation and social engagement with older American Indians and Alaska Natives with self-reported diagnoses of memory problems.
Advisory Council Feature – Leslie Best, BSW
Leslie Best has more than 40 years of experience in health and human services in Pennsylvania.
She has held a variety of positions in the Pennsylvania state government, including statewide oversight of the licensure of personal care homes and funding for county-based human service programs. In 1993, she joined the state Primary Care Office to start up a new program to increase the quantity and distribution of primary care practitioners, becoming program director in 1997.
For nine years Ms. Best served as the Chronic Disease Director for the Pennsylvania Department of Health, where she directed statewide planning and program implementation for the Divisions of Health Risk Reduction, Cancer Prevention and Control, Nutrition and Physical Activity, and Tobacco Prevention and Control.
She served as the President of the National Association of Chronic Disease Directors (NACDD) in 2011 and has been a senior public health consultant with NACDD since 2014. Ms. Best has provided consultation services to the Mississippi Public Health Institute; Geisinger Health System; the Family Health Council of Central PA and the Brown School of Public Health at Washington University.
Accomplishments include leading the development of the National Public Health Agenda for Lupus; recommendations for cancer prevention during early and older adulthood; management of three workgroups focused on primary cancer prevention in persons with adverse childhood experiences, American Indians/Alaska Native people and Latino Americans, and led the development of resources for use by states that integrate messages about Alzheimer’s Disease into chronic disease programs.
She also holds a degree in social work from Penn State University. Leslie is an amazing contributor to the Brain Health Advisory Group. She was interested in serving as an Advisory Group member to provide perspective as a long-time public health professional and knowledge from her experiences regarding program planning for this project. Thank you Leslie for your continued dedication!
Advisory Council Feature – Lucille White BA
By: Lucille White, BA
I am an enrolled member of the Seneca Nation (Wolf Clan), and I reside on the Seneca Nation’s Cattaraugus Territory. I am the middle daughter of enrolled Seneca members Ruth (Burr) and Frank Goode.
I am the Director of the Seneca Nation (SN) Community Planning and Development Department, with over 30 years of experience in the areas of administration, organizational development, community and economic development, planning, and grants administration and development. I continuously strive to maintain and further my knowledge of Seneca culture and history in order to assure cultural continuity in future generations. My professional objective is to expand and utilize my experience and knowledge toward success, to serve as a role model to others, and to serve as an instrument in strengthening the Seneca Community.
My experience includes serving as Deputy Director of Planning/Development, with responsibility for several major projects, including Elder Care, Housing Development, the Business Incubator, and Credit Union, to name a few. I currently oversee many developing projects and also supervise approximately 25 professional and support staff members. Previous positions with the Seneca Nation have included Executive Assistant to the Treasurer, Executive Assistant to the President, Administrator for the Council Office, Director of Housing, and founding member and former CEO of the Native American Development Corporation.
I have a long and distinguished history of service with tribal, local, and regional professional and civic organizations. Examples of recent/current service include: almost 10 years on the SN Health Board, several years as Chairperson; almost 20 years in service to the SN Economic Development Company, including serving as Chairperson; more than a decade on the SN Investment Board; founding member and current Secretary/Treasurer of the Seneca Diabetes Foundation; WNY Consultants Association; Southern Tier West – Regional Development Board; the National Society of Fund Raising Executives, and the National Indian Child Welfare Association. In addition, I was the Executive Director of “Honor Indian Treaties,” an organization formed to assist the fight against New York State that threatened the sovereignty of our Nation.
Eldercare projects have been my personal priority for over twelve years. In particular, I have worked with several elder care experts on an assisted living project that would provide aging in place for Seneca elders. Through honoring our elders, we must continue to assist in meeting their needs. Our elders deserve a better quality of life and to be respected.
I particularly enjoy serving on the Healthy Brain Initiative Project, as it provides me with the hope that, with reinforcements of many people working together, we can accomplish great things for our elders.
Advisory Council Feature – Joseph Ray
The survival of the American Indian People is the most important reason I choose to be involved with IA2. It goes that deep, my reasons why. So many of the kids I grew up with aren’t living in our town. We have a MAJOR housing shortage in Indian Country communities. They have moved to the city: Albuquerque, mostly.
I am fortunate to still live in the town I grew up in, but it’s not easy. I work in different arenas advocating for services for American Indians with Disabilities, educating about the importance of having the least restrictive environment to participate in activities of daily life.
Given the opportunity to speak on behalf of my peers, I am also a voting services Coordinator on my Reservation. The intersection of Disability and the importance of voting brought me to this place. Legislative bodies are slow to act. The plight of American Indian Elders and people with Disabilities is a cause near and dear to me.
My Reservation community, in the 1970s, was still a close-knit community. I recall being welcomed into many households for a snack, some guidance. We were so close to our Aunts, Uncles, and friends. It wasn’t evident then that the end of an era was near. A concern about the effects of years of trauma: historical trauma, substance abuse, mainly alcoholism, has brought many tribal members major health problems. I watched an Uncle deteriorate mentally from the effects of alcoholism, many others experienced tragically similar endings. Friends never reaching the age of 40, 30, others died in their 20s, or teens. That is a life common to so many tribal peoples.
A major health crisis still plays out its hand. Uranium mining led to radiation poisoning, and lives ended. The Nuclear age brought another form of death to Tribal people. These are my reasons for joining the IA2 Brain advisory group. The lack of data in Indian Country is detrimental to improving the health status of the people I grew up with.
I asked my grandfather in his later days how he felt mentally, and he said if his body weren’t breaking down, he would still be working. I know that the American Indian people are a resilient, survivors, enduring community. He did work into his early 80s, building highways, running heavy equipment. He would have continued working in his garden and driveway for many more years if he didn’t have a medical condition that may have been related to his days of carving roads in the mine.
My fierce loyalty to this man, my mom, grandmothers, sisters, and community is why I speak up, show at meetings, and articulate the situation in my community, when given the opportunity.
Advisory Council Feature – Wes Martin
We are honored to feature Wes Martin as this month’s Advisory Council Member Feature. Wes Martin is a proud member of the Oneida Nation and the Great Lakes Native American Elder Association president. After completing the University of New Mexico’s law program, in 1980, Wes dedicated himself to practicing law in Indian Country. He worked on the reservation for over 35 years and has represented people in every tribal court in Wisconsin.
He began his work with Elders by serving as a chair with the Great Lakes Tribal Council. In this position, he partnered with Elders of the Great Lakes region and doctors from the University of Wisconsin who were working on an Alzheimer’s project. Martin noticed that there was very little information available about Alzheimer’s disease for Native Americans in Wisconsin. These events led Martin to become involved with some national organizations in Duluth, Minnesota, and started working with Dr. Joseph Neil Henderson.
When asked why he joined IA2’s Brain Health Advisory Council, Martin shared that he had worried about his brain health when he started to struggle to remember the names of his long-time friends. Martin began to look for information regarding aging and could not find any resources and learned that the clinics on the Wisconsin reservations had hardly any programs to deal with Alzheimer’s. When IA2’s executive director asked if Martin would join the Advisory Group, Martin was thrilled to help spread awareness and information about Alzheimer’s.
When asked what success looked like for this initiative, Martin responded;
“Success would be to reach as many Native Americans as possible with information,” Martin stated that a coordinated effort is needed to be successful. The cultural differences between Alzheimer’s and dementia for Elders are essential to consider when creating information resources.
Advisory Council Feature – Kyle Wark
We are honored to feature Kyle Wark, MA, born and raised in Hoonah, Alaska, as this month’s Advisory Council Member Feature. His mother’s family is Tlingit and members of the Deisheetaan Raven/Beaver clan. Kyle’s father, from Seattle, was adopted into the Chookaneidi Eagle/Wolf clan. He currently works as a researcher for the Southcentral Foundation, working on Alzheimer’s, genomics, and social determinants of health projects.
When asked what inspired him to join the IA2 Brain Health Advisory Group, Kyle noted,
“I have a lot of experience with community engagement in Indigenous communities, and I have relatives who have developed dementia. Dementia is a real problem, and I have personally seen how some of the nuances and complexities can affect people’s lives. I also have extensive experience in research, policy analysis, and working in Indigenous communities.” Before his current role, Kyle’s interests focused on adverse childhood experiences and Indigenous research methodologies. During that time, he partnered with various Alaska Native advocacy organizations across Alaska.
When asked what success in this initiative looked like, Kyle responded, “The creation of resources made by and for Native people and communities. Including the development of resources and interventions that do not feel outside of our worldview.”
Kyle is a proud father of a 4-year-old daughter. He loves teaching her their language and culture and shares the importance of time spent with elders, as he notes they are the storytellers and knowledge holders. Kyle spoke about storytelling. He explained that “in my culture, we share experiences and stories, and people are then allowed the respect of making their own choices. When there is a lesson to be learned, our elders may tell us many different stories that all have one underlying message.”
Kyle recently assisted IA2 in adapting Dementia Friends materials for American Indian and Alaska Native communities as part of a working group convened by IA2 and staff from the University of Reno (UNR), Nevada. Dementia Friends USA is a program focused on education and training about life for individuals living with dementia. Participants are then encouraged to turn their understanding into action. With Kyle’s input, experiences, and expertise, the Dementia Friends content was revised and adapted for American Indian and Alaska Native communities. His background and expertise in anthropology and Alaska Native history and culture were particularly beneficial to the process. Click to learn more about the new Dementia Friends Champions training program and information sessions hosted by IA2 with training conducted by UNR.
Thank you, Kyle, for all your support, dedication, and hard work. We look forward to continuing to work together.
Featured Member – Larry Curley
For our inaugural E-news issue, we are honored to feature Larry Curley, a member of the Navajo Nation and part of our Executive Committee and Advisory Group. Larry has over 40 years of experience working in the aging and healthcare fields. He has worked with Congress, other branches of government, and national organizations on aging to develop support for programs affecting elder American Indians.
We asked Larry what inspired him to join the Advisory Committee and devote his time and energy to support the American Indian and Alaska Native Resource Center for Brain Health, and he said:
“Having worked for tribal governments (big and small), I have seen the conditions that exist in Indian communities. In juxtaposition to these conditions, I have seen the data on the impact of Alzheimer’s Disease and related dementias on Indian tribes, communities, and families as they deal with this disease. But, there are ways that we can lessen the impact and even delay the onset by ensuring that the elements of the social determinants of health are addressed and ameliorated. That is what makes this a hopeful and worthwhile effort! The people who are on the advisory council make this even more enjoyable; it’s educational, and I am meeting experts in the field.”
Larry hopes the American Indian and Alaska Native Resource Center for Brain Health becomes the “go-to” organization on matters relating to Alzheimer’s disease and Indian and Alaska Native communities.
Thank you for all your support, Larry! We look forward making your vision for the Center a reality. Stayed tuned for next month’s feature.
Each month, our e-news will highlight one of the American Indian and Alaska Native Resource Center for Brain Health’s Advisory Committee members.